A Lifelong Condition
Fetal Alcohol Spectrum Disorder (FASD) is a lifelong condition caused when a developing baby is exposed to alcohol during pregnancy.
Alcohol passes from the mother’s bloodstream to the fetus, which cannot process it the way an adult can. This disrupts brain development and can affect other organs.
The result is a spectrum of challenges, ranging from mild to severe, depending on how much alcohol was consumed and when during pregnancy.
Donate and Support Young Individuals with FASD
Support individuals with FASD by donating to FASD Communities. Your support contributes towards infrastructure repairs, life skills training, and stable housing.
Why FASD is Called the “Invisible Disability”
FASD is often called an invisible disability because most people with it show no physical differences.
Only a small percentage have facial features linked to prenatal alcohol exposure. This invisibility leads to misunderstandings, as teachers, employers, or family may mistake struggles for laziness or defiance. In reality, these are neurological challenges resulting in compromised executive functioning skills.
Because it is often unseen, FASD can result in stigma, misdiagnosis, and lack of support. Many are labeled with ADHD or behavioral issues without recognition of the root cause.
Challenges People with FASD Face
A major challenge for individuals with Fetal Alcohol Spectrum Disorder (FASD) is impaired executive functioning. Because the frontal lobe is affected, skills such as memory, organization, and money management are often limited.
These difficulties impact daily life in significant ways. Trouble remembering dates can lead to missed appointments or interviews. Difficulty prioritizing tasks can make individuals appear disorganized, while the abstract nature of credit cards can lead to financial problems. As a result, only about 20 percent of adults with FASD are able to live independently.
Impulse control and connecting actions to consequences are especially challenging. In school, children with FASD are frequently labeled as “defiant” and may spend more time in the principal’s office than in the classroom, falling behind academically.
They are often excluded from activities when teachers and coaches struggle to manage their behaviors. Families, too, can feel isolated as they navigate complex medical and mental-health systems in search of support.
Thriving with the Right Support
While FASD lasts a lifetime, people with it also have unique strengths. With patience, structure, and community support, they can not only succeed but thrive.
Insights From Families & Caregivers
Survey Question: What is the age of the individual with an FASD?
Key Takeaway: Most Individuals with FASD are young adults
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Survey Question: What is the current living situation for the individual with an FASD?
Key Takeaway: Most individuals with FASD are living with family members
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Survey Question: Which is a greater priority for your individual
Key Takeaway: Both housing & employment are critical needs
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Survey Question: Level of interest in FASD Communities housing/employment
Key Takeaway: There is very high interest in FASD Communities
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Recommended Reading
Trying Differently Rather Than Harder
A call to end prenatal alcohol exposure, the top preventable cause of birth defects.
Damaged Angels
A mother’s fight to protect her kids with FASD in a world blind to their invisible disability.
